I’m 78 with mild asthma (inhaler use maybe twice a year). I have been active, doing one hour of aerobics every day 7 days/week, until 5 months ago. Around November 1, 2022, I started my once-a-decade month-long bronchitis. Repeated Covid tests were negative. Just after Thanksgiving, the symptoms left my chest and migrated to my nose & throat - a cold, basically, no fever, no sore throat, but a positive Covid test. It was gone in 4 days.
I never realized until then that habitually, all my life, I have literally run up stairs. Well, I did that around December 1 and thought I was going to die, I was so out of breath (dyspnea). My heart rate was 130. I fumbled to plug in my oxygen concentrator & got it going in panic. I felt better in about a minute. A week later, having forgotten to go up stairs slowly, I had a repeat, so made an appointment with my PCP.
Now, I have coronary artery disease, with a stent in my left anterior descending coronary artery (a.k.a. the “widow maker” [can you still say “widow”?]). I only had one episode of angina just before my stent, but realized afterward that I did have what’s called “angina equivalent” dyspnea on exertion for several years before the stent. Now, this could be accounting for my symptoms - i.e. I could have a new coronary stenosis without angina, whose symptom is dyspnea on exertion (DOE). Here, I used my knowledge of the system to try to find out promptly, without going to the ER.
I saw my PCP, who punted. I then messaged my cardiologist on the health system website, described my symptoms, reminded him of my angina equivalent DOE and asked him to order a chemical (Lexiscan) stress test to look for coronary stenosis. It was negative for ischemia, but has a 10% false negative error rate. So, probably not a stenosis. Then, I got my PCP to order an echocardiogram to rule out other cardiac problems. It was mostly normal, but showed my aortic valve had narrowed somewhat compared to 3 years ago. When I saw the cardiologist, he didn’t mention this. Now I’m wondering if he even reviewed the study, since it was ordered by his buddy, my PCP. So, no clarity yet on that. I did ask him to order pulmonary function tests to see if it was my lungs causing the problem. Again, I gamed the system. Otherwise, I would have had to wait two months to see the pulmonologist to wait another month to get the PFT’s!
So, I waited the two months and saw the pulmonologist 2 days ago. I asked if my PFT results - which showed very mild COPD (basically the mild asthma I knew I had) - explained my severe symptoms and marked impairment of exercise tolerance. She said she didn’t know and prescribed a combination inhaler with a steroid. I explained that my PCP had prescribed one of these meds, called a DISKUS, in powder form and that I could not tolerate it, it caused mucous in my throat to turn to glue - literally unbearable. She said she would prescribe a regular inhaler containing liquid puffs. She told me she, herself, has asthma and can’t tolerate the powder, either.
So, I just got home from the pharmacy, opened the bag and found the DISKUS powder inhaler!. I immediately called the pharmacist (who know me far better than I wish, as between me and my wife we must take 15 rx’s per month). He said they ordered the DISKUS and he would have to call them for the correct prescription, then he would have to order it, that it might take another 2 days to get. Of course, this all happened just before closing time.
So, here is yet another of the rolling failures of systems and products, which have become, literally, part of every day life. This one is critical to my health and remaining days. Were my memory better, I could recount one for each of the past 7 days, but it is too irksome to do so. My head threatens to explode.
Now, after having life-changing symptoms for 5 full months and, seeing three different doctors - waiting 2 months for the last one - I not only don’t have an answer, I get handed the wrong medicine. If that doesn’t work, the pulmonologist will order an invasive cardiopulmonary exercise test. They are presently scheduling those for August and she want top wait a month before ordering it, to see if the meds cure the problem (they won’t).
Bottom lines: no service can be relied upon any more - even health “care”. No product is reliable, works as advertised or lasts. Icing on the cake today - my Apple watch has quit unlocking my Macbook Air. That was a convenience I miss, given my general ineptitude.
BTW, at 78, my actuarial life expectancy is 9.4 years. However, the symptoms I describe seriously reduce that. There is zero recognition of the fact that months of waiting for diagnosis and/or treatment represent significant portions of life expectancy for some of us. I suspect the government’s actuaries are well aware of this and are pleased. My next strategy is to excise my aversion to showing up at emergency rooms. If I decide I need a heart cath (and I may well decide that), I will show up with the chest pain I just developed after months of DOE. I would prefer to have the cardiopulmonary exercise test, but August may be a lifetime away.
Having worked in hospitals for the past 50 years, I believe things were better 10 - 20 years ago. Much more “progress” and we are lost. Please excuse typos and blatant errors. I write therapeutically so my head doesn’t explode.